CharityDude.com

Quinn- The following is a description told best by her parents.

Hello everyone - my name is Quinn Rosalie. I was born into this world in quite a hurry! I had my Mommy and Daddy quite fooled, when I decided to come join them 4 weeks early...and in such a hurry that the paramedics helped me join the world at home!! The doctors have told my mommy and daddy that I have Junctional Epidermolysis Bullosa - Herlitz. I spent 36 days in the NICU at Akron Children's Hospital and have recently been accepted into the clinical trial at the University of Minnesota's Amplatz Children's Hospital's for a bone marrow transplant. I got my new bone marrow on December 9, 2011, from an international donor. I spent 7 weeks in the hospital before my transplant getting big, strong and healthy! It gave the doctors a tremendous opportunity to learn all about me! I am the first child in the world to be transplanted this early (4 months old) for this condition (EB) and with a new reduced intensity chemo protocol. I am only the 19th to ever have been transplanted and the 3rd with JEB - Herlitz. My fabulous doctor - Dr. Tolar - likes to tell my parents he is learning so much from me about how to treat EB, and more specifically JEB - Herlitz. We hope that my treatment works out better than anyone could expect and signifies a turning point for EB. An awakening of sorts - that treatment ultra early is the BEST.

My family truly appreciates all the love, support and prayers we recieve from everyone - thank you! With love and God's abundant blessings, Quinn

Meet Quinn!

     Let me start by explaining my connection to the sweet little baby.

     Many of you personally know that I am a big boy and I have participated in a local Toledo contest in which I compete to lose weight against others and if they beat me, they win money.

     This week, two of my friends that I met have discussed a child named Quinn with a rare disease called EB (Epidermolysis Bullosa). This is a horrible disease that I am not going to even attempt to explain. Just take a moment of your time to look it up please.

     These 2 people do not even know each other, so as usual, I took it as a message that the Charity Dude needed to get involved.

Please Help

     As you can imagine the costs of medical procedures have piled on and this family needs our help. The were hard working people when this tragedy came, and have not asked for anything but our prayers. I am asking you to start helping with you money.

     The are currently a few way you can help.

1. Please give direct- Quinn R Seymour Benefit (acct # 9522817197) - Fifth Third Bank in Toledo area or Cleveland area

2. Sponsor a member of Team Quinn in the Glass City Marathon. Please contact me for more information or join our team.

3. My daughters girl scout troop has agreed to donate 10% of their sales (70% of profit) to Quinn's family. Please contact me at Dude@charitydude.com to place you orders.

If you live out of state place and order and we will ship to you for the exact costs. I will soon have an order page set up here at CharityDude.com

Please come back and see what other things we have going for this family. As always, please keep them in your prayers.